Parent Support – Virtual Events – September 2026
September 29 @ 7:00 PM – 8:00 PM
Parent Support – Virtual Event
Advocating as a Family: Navigating Usher Syndrome & Empowering Self-Advocacy
Virtual Event:
In honor of Usher Syndrome Awareness Day, we invite parents to an hour of education and support with Pamela Aasen, M.Ed., B.Ed. Join us to meet other parents of children with Usher Syndrome in a safe and welcoming space.
As the mother of two young adult sons with Usher syndrome, Pamela has firsthand experience navigating the challenges and triumphs of raising children with unique needs. She has spent over two decades navigating the complexities of early intervention, educational accommodations, and parent-professional partnerships. She works with local, national, and international organizations to support parents, youth, and young adults. Alongside her husband, Pam guided her family’s transition from early parent-led advocacy to empowering her sons to become independent self-advocates, disability community leaders and mentors to others.
A published author and active community leader, Pam serves on the Rochester Institute of Technology (RIT) National Technical Institute for the Deaf (NTID) Foundation Board, as well as national advisory committees for the Hands & Voices Family Leadership in Language & Learning (FL3) Center and the American Academy of Pediatrics EHDI Provider Education Center. She has written extensively for Exceptional Parent Magazine, sharing insights on building effective parent-professional partnerships, fostering self-advocacy in youth, and empowering families.
Registration is required:
Click here to register
or use the QR code:
When: Tuesday, September 29
Time: 7:00 pm – 8:00 pm
Location: Online
Have Questions?
Contact Hands & Voices of NY:
Email: handsandvoicesny@gmail.com
What works for your child is what makes the choice right!
We support families of Deaf or Hard of Hearing children, unbiased towards communication methods. We aim to provide resources for parents around all communication modes or methodologies. Our aim for our virtual events is to share a variety of perspectives and insights with parents on the many considerations that play into communication modes & methods.
